Dance, My Eating Disorder, and Me: Part 4
By Emma Neilson, DWC Staff Member
Medical Disclosure: Dancewear Center does not claim to have any medical expertise on any circumstances or diseases discussed. This is Emma’s personal experience and opinions. If you need help or are in a medical emergency, see the resources listed at the bottom of this post.
Trigger Warning: Eating disorders, trauma, self-harming behaviors, and sexual harassment.
The majority of my time up until this point was spent not being taken seriously because I was “medically stable” while I was in treatment from 2017-2018. I was lucky enough to have made it this far without any major physical health complications or scares. That was no longer true following this new development in my eating disorder. I will spare you the nitty gritty details of the symptoms I was experiencing at this time, but my health deteriorated to a point that I finally confessed to my nutritionist what was actually going on in the spring of 2021. I had not, until that point, divulged to anyone what I was actually doing. My nutritionist ended up giving me an ultimatum, and although I can’t remember exactly what she said to me, I distinctly remember throwing out the last bottle of laxatives I had in the parking lot of the place I was working at the time. And although I’ve thought about it since, I have not touched any laxatives since that day.
It was also during the springtime that other ED behaviors started showing up, and it took me several months to realize that I was experiencing what many in the ED community refer to as “Extreme Hunger”, which eventually led me to discover the concept of “All In” recovery. The end of the school year of 2021 was fast approaching, and I was struggling. I refused to go to treatment voluntarily, and because I was no longer a minor, no one could force me to. No one knew the severity of what was actually going on. I told myself that after my last show of the year, I would go “All In”. And that’s exactly what I did.
I ate what I wanted, when I wanted. The problem with doing this unsupervised, and after such a prolonged period of being underweight, is that you can give yourself refeeding syndrome (also see here for more information). At the time, I had no idea what this was, let alone that this was a thing that happened, so I was terribly unprepared for what I was about to go through. Typically if you enter an eating disorder treatment facility underweight, they are very careful with how and by how much they increase your intake of food and nutrients. I was not. After I quit using laxatives, my body started to feel a lot better, however, as I started the process of going “All In” many of the same health symptoms I experienced while abusing laxatives popped up again, including new ones. In the period of 1-2 months, I gained back that 21% of weight that I lost, plus an additional 7%. I had gained over a quarter of my body weight, in a span of 4-8 weeks. I felt terrible, and finally decided to see a doctor. I went into that appointment and came out diagnosed with Anorexia Nervosa. Throughout all of this, I was still dancing full-time.
The next few months consisted of lots of doctors, therapy, and nutritionist appointments. I got rid of clothes that no longer fit my new body. I spent months, and months, and months still experiencing extreme hunger, and was struggling to manage and cope with it. I just wanted to be free of my illness. Finally, after a bout with COVID that was accompanied by lots of nausea, my appetite finally started to regulate itself in January 2022. Seven months after I had started my recovery process. However, it took much longer than that to become okay with the way my new body looked and felt. The changes I put my body through were so drastic in such short amounts of time, and going from such a low weight to over my “normal” weight was extremely difficult to come to terms with, both physically and mentally. My body dysmorphia was severe, and my dancing was greatly affected as well. Just like how sometimes when you switch to a new pointe shoe it can take time to get used to, it took an adjustment period to get used to how to dance in my new body.
As I continued through the rest of 2022, I started to feel more at home in my life, my body, and my dancing. I graduated from my dance program. I started working with DWC full-time. And although not everything in my life was rainbows and butterflies, the difficult things no longer triggered me to a point where I wanted to turn to my eating disorder. It was no longer worth it to me. And it still is not. Although disordered thoughts and body dysmorphia can still sometimes be a daily struggle for me, I have not engaged in any active ED behaviors since 2021. Reaching my “goal weight”, and getting the diagnosis I had always wanted, meant nothing to me if I was going to die at the hands of this disease. At the end of it all, the body I achieved and goal weights I hit never made me happy. And it was never enough. No matter the lengths you go to to please your eating disorder, it will never be enough. EDs will suck everything out of you until you have nothing left to give, including your life. I am lucky enough to still have mine.
The purpose of me sharing this story with you is not to receive any pity or comments like “You’re so strong and brave!”. Although it took me time to be able to tell this chapter of my story, it is not difficult for me to talk about. If anyone knows anything about me, they know I LOVE to talk. I want to share my experience and my story. Ultimately, my goal is this: If I have made you feel less alone or more seen, my job here is done. If I have made you realize that you or a loved one is struggling, my job here is done. If I have helped you take the first steps to reaching out for help, or even just gotten you thinking about it, my job here is done.
As long as there is breath in my lungs, I will continue to openly talk about my experiences. I strongly believe that there should be no stigma around eating disorders, especially in a field (re: DANCE), where they are so prevalent. And the first step to end the stigma, is to talk about it. Educate yourself. Learn and see without judgment. Realize that people of all shapes and sizes can be silently struggling with eating disorders. Mentally, I always struggle more internally when I look “healthy”. Weight is not indicative of struggle. Know that there are many more eating disorders besides Anorexia Nervosa and Bulimia Nervosa. Eating disorders are sneaky and manipulative. EDs can completely change the person that they are plaguing. If you have a loved one in your life who struggles, think about having a conversation with them about differentiating between them, the person, and their eating disorder.
Eating disorders have an extremely high mortality rate, and anorexia has the highest mortality rate of any mental illness. There are resources. There is help. You don’t have to go through this on your own. It is scary, but the freedom on the other side of the tunnel is so, so, worth it. I got my life back, and so can you.
If you or someone you know needs help please visit https://www.nationaleatingdisorders.org.
For emergencies please call 911.
And for more resources you can visit our page listing local and specialized help options.
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